The primary hyperoxalurias are ultra-rare diseases. Therefore, we want to increase awareness and information about it. Have a look at our recent campaigns:
To commemorate Rare Disease Day on February 2021 we have asked patients worldwide to present their stories in their own language to show that although we are rare we are many, strong and proud!
In case you are in trouble, this is the way to get help: screen the QR code, answer the questions and send us an email.
Information Brochure for Patients with primary and secondary hyperoxaluria