Featured by the PH&HP-team the European advocacy group for patients with primary hyperoxaluria welcomes you! The pages you will visit are based on individual input of medical professionals, patients, parents, translators, artists, IT specialists and friends of PH Europe. All the content presented is independent of any outside sponsoring, with the exception of grants received from the German PH Self-support group so far. Our page is the source of first information about a rare disease and guidance for patients wherever they live in Europe. The input from patients and parents telling their individual stories is here of paramount importance. Nobody has received any earnings or reimbursement for her/his input. The idealism to help has been the main driver, which should remain, as it is the best motivator for such a great project. Hence, many, many thanks, for all who have helped so far! Let us move forward together and please, remain supporting us!
Patient report of a family on primary hyperoxaluria type 2 ..
Very emotional report on primary hyperoxaluria type 1..
Theresa has primary hyperoxaluria type 1 and she runs after a combined liver-kidney transplantation at the Bonn-marathon..
A patient tells what she experienced before, during and after her combined liver and kidney transplantation..
A patient reports on the course of her disease..
A patient report from Switzerland..
Clinical signs and symptoms
Current treatment options
Abulena, 12 years old, speaks about hyperoxaluria type 1.
Theresa, 25 years old, speaks about hyperoxaluria type 1.
Rabea, 19 years old, speaks about hyperoxaluria type 1.
Fatih, 9 years old, talks about his experiences with hyperoxaluria type 3.
PH-Europe, c/o. David Attar, Franzensbaderstrasse 23, 14193 Berlin, Deutschland