Movement, thanks to organ donation!
Theresa has primary hyperoxaluria type 1 and she runs after a combined liver-kidney transplantation at the Bonn-marathon
Living with Primary Hyperoxaluria (PH) can be a challenging and deeply personal journey. This section is dedicated to sharing real-life experiences from patients and caregivers across Europe.
Each story helps others feel less alone, offers practical insights, and gives a voice to those living with PH.
If you or your loved one has been affected by PH and would like to share your experience, please write to us at info@ph-europe.net. Whether it’s a short message or a detailed journey, every contribution matters.
Together, we learn. Together, we support. ❤️