We’re a European support network powered by the compassion and dedication of patients, parents, medical professionals, translators, artists, IT specialists, and friends. This website is built entirely through voluntary contributions, driven by a shared commitment to make life with PH a little easier and a little less lonely. 

All content you’ll find here is independent and free of commercial influence — with the sole exception of a grant kindly provided by the German PH Self-Support Group. No one has received payment or compensation for their contributions. This is a project built on idealism, care, and community spirit — and that’s what makes it so special. 

This website serves as a first source of information for those newly diagnosed, looking for guidance, or wanting to connect with others across Europe. Your stories, your voices — especially those of patients and caregivers — are at the heart of what we do. 

Thank you to everyone who has contributed so far. Let’s keep building this together — and please, continue to support us on this journey.