The primary hyperoxalurias are ultra-rare diseases. Therefore, we want to increase awareness and information about it. Have a look at our recent campaigns:
To commemorate Rare Disease Day on February 2021 we have asked patients worldwide to present their stories in their own language to show that although we are rare we are many, strong and proud!
'My Life with Primary Hyperoxaluria' - A Learning Colouring Book
In case you are in trouble, this is the way to get help: screen the QR code, answer the questions and send us an email.
An educative video for kids to understand how our organs deal with oxalate.