Our campaigns

Our campaigns

The primary hyperoxalurias are ultra-rare diseases. Therefore, we want to increase awareness and information about it. Have a look at our recent campaigns:

RARE DISEASE DAY 2021

RARE DISEASE DAY 2021

© PH&HP-Team

To commemorate Rare Disease Day on February 2021 we have asked patients worldwide to present their stories in their own language to show that although we are rare we are many, strong and proud!

Niederlande

Colouring Book

© PH&HP-Team

'My Life with Primary Hyperoxaluria' - A Learning Colouring Book

Emergency Card

Emergency Card

© PH&HP-Team

In case you are in trouble, this is the way to get help: screen the QR code, answer the questions and send us an email.

Emergency Card

The island organs video:

© PH&HP-Team

An educative video for kids to understand how our organs deal with oxalate.

Deutschland

Bike4Kidneys


© PH&HP-Team

Our project 'Bike4Kidneys' for RAREDISEASEDAY 2020
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You’ll Never Walk Alone!